July 1, 2008

Today was a good day overall for our little Camo. He has slept most of the day. He ate almost all of his pancakes and eggs for breakfast, but not much lunch. The dialysis machine clogged (which is normal after running continuously for over 50hours)... so the nurse unhooked Camdyn from the dialysis machine and we laid him down and took him for a wagon ride. He laughed when daddy bumped the wagon into the wall :) This was a wonderful feeling for Camo - since he has been constantly hooked up to the dialysis machine, and blood pressure glove on his arm, and the bandage wrapped around his little finger, to keep an eye on his oxygen level.. he also has to stay laying on his back - which is not easy, for a tummy sleeper. When the dialysis machine was being unclogged and setup to restart (about a 2hr process) , the nurse inserted a medicine into Camdyn's i.v. to unclog any possible blood clots that may have occurred.. just as a precautionary measure. He has had pretty good spirits today. The only change in a report from the labs for the day - is that his potassium level is low, but not so low at this time that he will need a 4th blood transfusion, yet. Camdyn had spaghetti for dinner - and ate it all! even had some of a sugar cookie for dessert. He has only been allowed @ 700ml of juice a day (which for those of you who know him, know this is a challenge - considering how much he ~loves~ to drink!!).. hopefully soon he will be allowed to have a little more. We saw about 10minutes of "our Camdyn" today... meaning- he laughed and played a little and showed his sweet, happy personality to us. We don't see much of this these days, due to the cruel symptoms of the disease. It has made him extremely irritable. Camo is ready for bed now, seems to be dozing off peacefully. I know this may begin to sound redundant, but we can not thank you all enough for all of your prayers and love. This has really been a difficult time for mommy and daddy to see our baby suffering, and not be able to 'fix it'. We desperately wish we could take his pains away and have it placed on us instead. It breaks our hearts over and over each day, when Camdyn tells us his tummy hurts, and that he just wants us to hold him and walk around.. he keeps saying - he wants to go home.. and he wants his bed. He is such a sweet baby and so tender hearted. We talked to him about going to the Zoo, Chuck-E-Cheese and 6Flags.. he just sadly looks at us and says " I just want to go home". There has not been nothing in our life that has made us feel as helpless and desperate - as this. We know our family and close friends feel the same. I know the prayer request initially sounds silly, but please pray for Camdyn to be able to to "tinkle" on his own. This would mean his kidney's are functioning again, on their own. Then we can take our little man home. Also, please pray for Camo to feel comforted and at peace, as well as for the internal pains to subside.
Thank you so much. We are going to try to get some rest now. With love...