July 11, 2008

Camo is doing much better. He had a 3hour dialysis today and sleep through most of it. He had a total of 1200 cc's today :) wow! the doctor stated that is a great number - for any child :) Camo also had a huge (3 diapers full) "poo poo". This is exciting :) He has not had a b.m. for almost a full week. (you can only imagine how quickly the room cleared out when this happened :) He is showing great signs of improvement with his kidney functions. On the other hand, the catheter he has to keep in (for a min. of 2 weeks) is really starting to bother him. We have noticed a dramatic change in our little man - with his temperament, irritability and trust (not only towards the doctors and nurses, but even towards us!) ever since the traumatic experience he had to endure - when the nurse made the mistake of ballooning his catheter in his urethra before it was inserted fully into his bladder (this was on a Thursday, before July4th - can't remember the exact date at this time). We are really struggling with this incident. It has traumatized Camdyn in many different ways. He used to love his baths (even most of his sponge baths - prior to this occurrence), now he kicks and cries until his voice is hoarse - when either mommy or daddy attempts to sponge bathe him. It crushes our insides, knowing he has been through such a terrible experience - that it has effected him this much. He is terrified when anyone walks in the rooms - unless it is close family or friends that he has seen on a regular basis. When he first arrived at the hospital, he did not care for the doctors or nurses to come in - but he was tough and he remained calm - while they did whatever they needed to do. Now, since this incident, his little body starts to shake/tremble and tears instantly begin to fall - when a doctor or nurse walk in. It breaks our heart. We are praying to not become bitter and even more angry because of this... it is just so hard to keep a positive spirit - when every single day and night - we are constantly reminded of his trust issues because of the mistake that was made, on that day. We have spoken to a few directors and they have told us this occurrence is "being reviewed" with the board of directors... not sure what will come from that... we'll just have to wait and see.
Please continue to pray for Camdyn... for his body to continue to heal and also for his mind and spirit to not be effected long term from the trauma he has experienced.
Thank you all very much.