This morning we were admitted into a hospital room on floor5 (the "23hour observation floor) at @ 5am... Camo had only slept a total of 5 hours in the past 24hours.. he was extremely tired. The nurse woke us up (after only sleeping about 1.5 hours), the doctor had ordered additional x-rays and an intense sonogram for him. The doctor had requested the sonogram, due to Camdyn having complained for several days and now non-stop of his belly button (that is what he refers to, when speaking of his tummy) hurting. He really seemed to be in severe pain at this time.
At this point, Camdyn had not eaten anything since the previous Friday (June 20th).. and almost every time he would drink, it would immediately be thrown right back up.
With these symptoms, all the doctors and nurses seemed to be convinced that Camdyn had Gastroenteritis. It was only later in the day, after reviewing recent labs that the doctor came in to our hospital room and told us the bad news...
The radiologist reviewed the x-rays, and found that Camdyn's large and small intestines as well as his kidneys were enlarged. This is not a symptom or sign of Gastroenteritis. The doctor came in to our room and began to explain to us that this is a much more serious situation. He told us that he would be sending in a kidney dr. to our room, to talk with us.
A few long hours of waiting for the news.. a kidney specialist walked into our room and explained the following... Camdyn has been diagnosed with Hemolytic Uremic Syndrome (also known as HUS). He told us that more than likely, this was caused from exposure to E.coli and that this had caused his kidneys to completely shut down. We, of course, were heartbroken to hear our angel had been diagnosed with such a painful and cruel disease. There is not any way to pinpoint where he picked up the E.coli; it could have been from a lake or pool.. or from some foods he had eaten - any time within the past 3-4 weeks. There is no known cure for this disease. We can only hope and pray that his body can regain full function again of his kidneys, on his own.
The dr. told us that he had scheduled a surgery for Camdyn the following morning (6/26) to insert a catheter, which would allow for dialysis.
Needless to say, this was a very restless and tearful night..
At this point, Camdyn had not eaten anything since the previous Friday (June 20th).. and almost every time he would drink, it would immediately be thrown right back up.
With these symptoms, all the doctors and nurses seemed to be convinced that Camdyn had Gastroenteritis. It was only later in the day, after reviewing recent labs that the doctor came in to our hospital room and told us the bad news...
The radiologist reviewed the x-rays, and found that Camdyn's large and small intestines as well as his kidneys were enlarged. This is not a symptom or sign of Gastroenteritis. The doctor came in to our room and began to explain to us that this is a much more serious situation. He told us that he would be sending in a kidney dr. to our room, to talk with us.
A few long hours of waiting for the news.. a kidney specialist walked into our room and explained the following... Camdyn has been diagnosed with Hemolytic Uremic Syndrome (also known as HUS). He told us that more than likely, this was caused from exposure to E.coli and that this had caused his kidneys to completely shut down. We, of course, were heartbroken to hear our angel had been diagnosed with such a painful and cruel disease. There is not any way to pinpoint where he picked up the E.coli; it could have been from a lake or pool.. or from some foods he had eaten - any time within the past 3-4 weeks. There is no known cure for this disease. We can only hope and pray that his body can regain full function again of his kidneys, on his own.
The dr. told us that he had scheduled a surgery for Camdyn the following morning (6/26) to insert a catheter, which would allow for dialysis.
Needless to say, this was a very restless and tearful night..
No comments:
Post a Comment