August 3, 2008

Camo - July 28-30,2008

Hello to all! Camo is doing so much better :) we took him to school on Monday for a 1/2 day. He struggled with separation anxiety when we took him in the morning (we did too), and had a hard time laying down to nap - but when it was time to pick him up, he was super happy! He loved so much being reunited with his friends and teachers. I have to mention this - because it truly melted my heart... when we took him to school on Monday (his first day back ) we were talking to Ms.Lynn about how he may have a hard time with his nap - since he is still not on a regular schedule... She simply stated " I will hold him the entire time, if that is what he needs". How precious! Also, when we picked him up - she stated that he did really good with potty time, and even teared up when he first went " tee- tee"... thinking about how much everyone has prayed for him to start being able to "tee- tee" - which would mean that his kidneys are functioning properly again. We are so blessed to have so much love given to our little man - from his school teachers and little school friends. Since he spends almost more of his awake hours with them - than he does with us - it is so very comforting to know how much he is loved and cared for. We kept him home on the 2nd day - because he needed to try to catch up on his rest.
He is beginning to fall asleep a little easier at night.. working from 11p to 10pm then 9pm - trying to get back to the normal bedtime of 8:30pm that he was used to. He now has difficulty falling asleep - with his room completely dark (never had this problem before - prior to him being in the hospital)... we figured out that this is caused from being in the hospital for 4 weeks - with all lights constantly on - he adjusted to is somewhat, and is now having to try to change that mindset. We picked up a nightlight for him and he is doing pretty good now :)
His next follow up date is scheduled for lab's only - on Thurs., 7-31-08.
Thank you all again so very, very much for all your prayers!

July 23, 2008

Hello all! Camo is doing soo much better since he is back home. He is almost 100% back to being himself. He is loving his bath times, he is eating well and just completely content with sitting at home playing. We took him to the dr. on Tuesday (July 22) and the dr. said everything is looking good. We talked to him about how Camo was not taking his medicine too well, because he did not like the taste of it.. and it was alot to give to him. We mentioned that 30ml, 3x's a day was alot to try to make him take - since he hated the flavor of it. The dr. then looked at us with a deeply concerned face - and said, " you are giving him how much?!". We then told him, the discharge paper (that a nurse completed on our day of departure) wrote down " 30 ml , 3x's a day". We have a copy of this at home. The dr. then told us - Camo should only be given TWO ml's, 3x's a day ( a total of 6ml's daily - NOT 90 ml's daily). We panicked. This medicine is 'lasix' -which is for his blood pressure and to also help in assisting his kidneys to produce urine. The MAX. that Camo was given of this at the hospital - on his worse day - was 10 ml's per dosage. The dr. is going to follow up with the nurse that discharged this information incorrectly and also contact the pharmacy that filled the prescription. We are so thankful that at this time, there seems to be no long term effect from this "over dosage". We believe this is only because of the prayers that are still being said for our little man. Thankfully, it tasted bad - and he spit probably more of it out, than what he actually swallowed.
Other than that horrible discovery... all else is going well. Still trying to work on getting Camo on a regular routine (nap time from 12n-2p and bedtime around 8pm)...
Please continue to keep him in your prayers. Our goal is to have him back in school starting next week. He is already looking forward to this - he keeps talking about his teachers and 'best' friends :)
We are so thankful to have our angel home. Thank you again for all your loving prayers and thoughts.

Going Home!

We have a very exciting update to share with you all! The doctor came in this morning around 8am to tell us that we were going home today. Around 11am, we were discharged and heading back to home sweet home! Camo was so excited! When we got home, he wanted to sit in his room and play with all the toys he had missed so much. He then slept for about 4 hours, which was good for his recovering body. We are so thankful for all the thoughts and prayers. It is such an answer to prayer that he is back at home now and doing so well. He has a follow-up appt next Tuesday. We will keep you updated! :)

July 17, 2008

Camdyn had a great nights rest and woke up happy :) He ate all of his breakfast this morning and as soon as he was finishing up - the nurse came in and said it was time to go for his catheter x-rays. We took him to the x-ray room, and while he was laying down - they "de-ballooned" his catheter in hopes he could "tee tee" on his own - and this would naturally push the catheter out of his body - on its own. He could not "tee tee" on his own laying down (even after the nurses poured a couple of bottles of warm water on "that area", hoping this would trick his body into feeling like it's in a bath tub... so he would have the sensation to urinate. This did not work either. So! We sat him up and asked him if he wanted to stand up and tee-tee like a big boy - he said "yes!". As soon as he stood up (and we had the cup/bottle in place) - he "tee-teed" all on his own - and pushed the catheter out! he experienced NO PAIN at all!!! We have never been so happy to see him tee-tee!!! Oh my goodness! We are super thrilled :)

We are back in his hospital room right now, waiting on the results from the x-rays. Camo is trying to walk around everywhere. He is doing a great job! He is still really wobbley and unstable, but is anxious to get going! Camdyn is in such a great mood.. he is laughing and loveable... very much like the sweet baby boy we know.

The nurse just stepped in and said that at 2:30pm the dr. is going to remove his vascath (the catheter in his chest)... We asked the nurse if this means the results from the x-rays were great?! the nurse assumes "yes" but is not for certain. The dr. will come by shortly to update us.
Thank GOD! What an amazing answer to all of our prayers!!!! WOW! We are soo happy and relieved! We are so close now :)

***Thank you our Heavenly Father, for the mercy and goodness you have shown to our precious baby. We praise you for the healing you have delivered in Camdyn's body. ***

UPDATE UPDATE UPDATE UPDATE UPDATE UPDATE UPDATE:
Camo's dr. came by around 2pm and was ready to do the procedure. We took Camdyn on a wagon ride to the 2nd floor and into the Operating Room. The dr. said he would not need to sedate Camo - he would simply use an instrument (similar to a pair of tweezers) and pull of the stitches and vascath. Camdyn cried, not because he was feeling any pain, but because he was fearful that he would feel pain - at any given second. The procedure only lasted about 10minutes. Once the dr. completed the procedure, we gave Camo a Popsicle and took him for another wagon ride back to our room. The dr. said the only precaution we need to take at this time - is no full bath for 3 days (today counting as day #1). Easy enough!

We are back in our room now. Camdyn is playing with his race cars, batman and superman... and just laughing and talking up a storm. He is so happy and relieved. The plan now, is to be able to leave here tomorrow (on Friday) and take him home :) yipee!!!!

We can not express our gratitude enough - to all of you for your prayers, thoughts and love. Thank you so much to everyone for all of your messages, phone calls, gifts and continuous visits to the hospital. You are all amazing, we are so blessed to have such an amazing circle of family and friends.
We love you all.

July 16, 2008

Camdyn was a sleepy head this morning (due to the catheter pains and the constant interruption of the nurses coming in to take his vitals and blood)... but overall he is doing good. Our dr. came by this morning. He is taking him off all but one medicine and stated our surgeon should come by this afternoon to explain to us the details of the procedure to take the catheters out. He stated that most likely - we can plan on the surgeon performing an x-ray on Thursday morning - to see if Camo's urethra has healed... if it has (you ready for this?!) - they will take him to the Operating Room and take out both catheters (the one in his bladder as well as the one in his chest -that was used for the dialysis)!!!!! If all goes well, we are going to be taking our baby boy home on FRIDAY!!! yipee!!! So, please pray that the catheter has healed with the healing process of his urethra.
Camo has eaten well today and has already had a couple of wagon rides. He is trying to walk more and is keeping up a great spirit :) He is such a tough little cookie :)

July 15, 2008

Camo had a good day today. All his labs are looking good. The dr. has really minimized his daily medicines. His irritability has settled down some. He can pull himself up with little or no help... and is really trying to walk on his own. He is doing a great job!! We took him on a wagon ride, several times.. inside and outside. He loved it!! We brought in some pizza for him tonight - since he has been asking for it, just about every day since we have been here (either that or "macky-rony and cheez"). He was happy and very active tonight... he colored on his new dry-erase board and played with his race cars. Camo slept well last night, for the most part... with the exception of some piercing pains (in his "goober" - from the catheter) that would wake him up in tears :(